FRA disability project stakeholder meeting

Over 40 people from service-user organisations, psychiatric associations, legal organisations, the European Commission, the Council of Europe and national human rights organisations came together on 4-5 November 2010 to discuss FRA’s disability work.
Clip art picture - meeting on disability

“Nothing about us without us” is the motto of the disability movement. The participants to the meeting all agreed that this slogan should guide FRA work on the fundamental rights of persons with intellectual disabilities and persons with mental health problems.

This means that FRA research, networking and communication activities are done with and by persons with intellectual disabilities and persons with mental health problem, not about these groups of individuals.

The aim of the FRA disability meeting was to explore ways through which the different stakeholder groups can contribute to the protection and promotion of the fundamental rights of the two target groups, and to identify how FRA research findings can feed into this.

The right to vote

Clip art picture - ballot box

At the meeting, participants discussed the right to vote of persons with intellectual disabilities and persons with mental health problems.

The UN Convention on the Rights of Persons with Disabilities guarantees this right, but participants highlighted the gap between the law and what happens in reality.

  

Involuntary placement and treatment

Clip art picture - involuntary placement

The meeting participants also talked about involuntary placement and treatment – when people are made to be somewhere they do not want to be or receive treatment they do not want to have.

They talked about whether the UN Convention on the Rights of Persons with Disabilities totally forbids involuntary placement or not, and participants spoke about their experiences of involuntary placement or treatment.

  

Legal capacity

Clip art picture - legal capacity

Legal capacity – the capacity to make decisions that have a legal consequence, such as renting a flat or getting married – was the final topic that was talked about at the meeting.

Persons with intellectual disabilities spoke about their experiences of living with support, and about guardianship. Participants talked about the need to move away from guardianship (when someone takes decisions instead of you), towards supported decision-making (when someone helps you to take decisions).

This web page is written in Easy read icon Easy Read format using pictures and simple language. Easy Read is used, for example, by people with an intellectual disability, the elderly or speakers of foreign languages.
Downloads: 

Involuntary placement and treatment of persons with mental health problems (Mario Oetheimer, FJ - FRA)

[ppt]en (631 KB)

EASY READ Meeting agenda - 4th and 5th November 2010

[pdf]en (744.21 KB)

(EASY READ) Questions for debate (stakeholder meeting, 4-5.11.2010)

[ppt]en (1.92 MB)

(EASY READ) The Participation Spectrum (FJ - FRA)

[ppt]en (1.04 MB)

Questions for debate (stakeholder meeting, 4-5.11.2010)

[ppt]en (875.5 KB)

Speech by FRA Director, Morten Kjaerum at the stakeholder meeting (4-5 November 2010)

[pdf]en (100.18 KB)

Speech by Eva Sobotka, Networking and Human Rights Coordinator (Stakeholder meeting, 4-5.11.2010)

[pdf]en (119.98 KB)

The Participation Spectrum (FJ - FRA)

[ppt]en (713.5 KB)

Meeting Report - Fundamental Rights of Persons with Intellectual Disabilities and Persons with Mental Health Problems

[pdf]en (5.74 KB)

The right to political participation of persons with mental health problems and persons with intellectual disabilities

[pdf]de en fr (1.33 MB)

ENIL – European Network on Independent Living Legal Capacity (Jamie Bolling, ENIL)

[ppt]en (139.5 KB)

Legal capacity (Tina Minkowitz)

[ppt]en (66 KB)

Recent judgments on the right to vote: implications for practitioners (Jan Fiala, DRC)

[ppt]en (111 KB)

"Involuntary Treatment ” – Legal capacity, Article 12 CRPD and the paradoxes of beneficience (Jerome Bickenbach, SPR)

[ppt]en (471.5 KB)

Participation of people with intellectual disabilities in European elections (Katrina Ward, Inclusion Europe)

[ppt]en (262 KB)

The right to legal capacity: guardianship at the ECHR (Jan Fiala, DRC)

[ppt]en (107.5 KB)